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DBlog Week 2017: The Blame Game.

 Diabetes, HealthCare, Heart Disease, Type 1, Type 2  Comments Off on DBlog Week 2017: The Blame Game.
May 172017
 

I would like to first apologize for not being able to post the last two days. I signed up for the Diabetes Blog Week #DBlogweek with full intentions of posting every day. Monday morning I was sitting at my lap top about to begin writing Monday’s blog when I heard a crash so I went to investigate. Without getting into details I ended up taking my wife to the hospital. She is ok now but it kind of took precedence over blogging.

Well now it is Wednesday and here I am. I will post what I would have posted on Monday and Tuesday this weekend but today I’m going to stick to the topic of the day, “The Blame Game”.

Over the years I really haven’t experienced very much finger pointing at me as far as my diabetes goes. I have absolutely experienced and still do, a lot of well-meaning people say things out of ignorance about what I need to do at any given moment but blaming me for having diabetes or for having high sugar levels, not so much. I guess I’m lucky that way with one exception. That would be my primary care doctor, sort of.

I am not the type that as a rule allows what other people say to me to bother me on a personal level. It’s not that I don’t care it’s more that I know that everyone has their own thoughts and opinions but that doesn’t mean they are right. So it doesn’t bother me when people are pointing fingers. I take it with a grain of salt. With that said, I have this primary care doctor who I go see basically to get refills for prescriptions other doctors (specialists) have prescribed for me. Now what he says to me in the examination room doesn’t bother me. It’s what happens after.

I recently went to see him less than two weeks ago. Every time I see him about a week later I get in the mail a summary of the visit. And it always says under the reason for visit and assessed problems sub section the following:

  • Coronary Artery Disease
  • Diabetes Mellitus with neurological manifestations, uncontrolled
  • Diabetic Neuropathy
  • Long term insulin use
  • Noncompliance with treatment

 

Well I take issue with this section as I don’t feel it is accurate. Now remember this all falls under the “Reasons For Visit & Assessed Problems” section.

Line One, Coronary Artery Disease: Other than getting my heart med refills I do not go to him for my heart issues. I have two specialists I see for that. So why is this here?

Line Two: I get the neurological manifestations part but the “uncontrolled” part kind of bugs me. Yes, I have been having issues as of late but it is not for my lack of trying but instead an issue of conflicting medications and other factors.

Line Three: Diabetic Neuropathy. Isn’t that what line two says?

Line Four:  Long term Insulin Use.  Is this an assessed problem? That is where this line is on the summary. This being here makes me feel like I am doing something wrong by using insulin. It might as well say Long Term Heroin Use because that about how it makes me feel. Last time I checked, I kind of don’t have a choice. Taking insulin for me is a given and unless they come up with a cure for diabetes it is something I will be doing for the rest of my life …. Also he doesn’t write my script for insulin. I have a diabetes specialist for that. So why is this even here?

Line Five:  Noncompliance with treatment.  Maybe I am being petty but this line bugs me the most of all. It bugs me because I try very hard to take care of my diabetes. The problem is not noncompliance but more that I have other medical issues which interfere with my ability to keep my sugar levels in check at all times. Over the last couple of years I have been prescribed medications for other issues that directly interfere with my glucose levels in both directions. I have had to stop taking meds and get new ones prescribed for this reason. Noncompliance suggests that I am making choices not to take care of myself. So this kind of angers me a bit and it also suggests that he feels I am to blame. For the record.  I and nobody with diabetes is to blame for having diabetes. It is not something that anyone wishes they could suffer from.  Also as far as what a person is responsible for as far as treatment goes, a person only needs to give it their best effort. Nobody can ask for more than that and that is all anyone can do. And that is what I do. I always try to keep things under control. It just doesn’t always work out that way but it is certainly not a noncompliance issue.

There are things that should be on this little list but aren’t. It really does make me wonder about the purpose of this summary. Is it really a summary of what they are billing me for?

So there you have it. The written word bugs far more than someone standing in front of me blaming me for something.  Not sure what that says about me. It’s just the way it is.

As far as the second part of today’s topic. I don’t think I would want to turn him into puppet and make him say want I want to hear. It’s not really what he says that bugs me it is the damn letter I get a week later that bugs me.  With that said it might be nice if he would just acknowledge that I am trying. I’m not noncomplying! That there are other issues going on. Although he is not the one prescribing all my meds for me he definitely knows that I am on them and he knows what they are for. After all he is the one that sends in the refills for them.

The more I write here the more I believe I am going to question him on all this next time I see him. Might be the healthy thing for me to do and maybe the next letter will be different.

Mulcavey, A Good Example Of Diabetes Ignorance And Ignorance In General

 Diabetes, Government, Ramblings, Type 1, Type 2  Comments Off on Mulcavey, A Good Example Of Diabetes Ignorance And Ignorance In General
May 132017
 
Mick Mulcavey

Mick Mulvaney, Now there’s a name most people don’t know. I didn’t when I woke up yesterday morning but I do now and I won’t forget it.

So who is he you might ask. He is the Director of the White House Office of Management and Budget under Trump and he is a complete ass. Why do I say this? Simple, in response to a question asking if the Republican plan to repeal and replace ObamaCare should pass the Jimmy Kimmel test he said yes but then went on to expand on what he felt that means to him. Not Cool.

Just in case you don’t know, the “Jimmy Kimmel Test” is a phrase that has its origins from Jimmy Kimmel himself in which during a monologue last week he basically begged for politicians to keep the ObamaCare guarantee for coverage of pre-existing conditions. During a press briefing  Mulvaney  was asked if he agreed with that statement. He said yes, but then went on to add a little something that means no. What he said was this:

“I do think we should meet that test. We have plenty of money to deal with that. We have plenty of money to provide that safety net so that if you get cancer you don’t end up broke  …. That is not the question. The question is who is responsible for your ordinary healthcare? You or someone else?”

He then went on to say:

“That doesn’t mean we should take care of someone who sits at home, eats poorly and gets diabetes”

So I said in an earlier post that I was angry. Crap like this has a lot to do with my anger and frustration. It was a very ignorant statement to make .One that does not consider all the facts and also shows the inhumanity of politics.

So, not that I think Mr. Mulcavey is going to read this post, but I wish he would he might get an education if he did.

Mr. Mulcavey if you happen to read this please consider the following you may want to apologize for your words on Thursday. (Please note that I am not a doctor nor a scientist but what I have written below is a thousand times more than you obviously know when it comes to diabetes.)

There are multiple types of diabetes. Type 1 and Type 2 are the most common. There are more but we will focus on these two.

Type 1 is caused by the immune system of the person destroying the beta cells in the pancreas. These cells make insulin and in case you didn’t know insulin is pretty important stuff that is needed by the body in order to process glucose. This is an autoimmune issue and has nothing to do with sitting around the house and eating poorly.

Type 2 diabetes is not as clear as type one but here is what we know.

  1. People are at higher risk for type 2 if it runs in the family (Genetic). Right there tells me that some people have no choice, they can take care of themselves all they want they may still develop type 2 diabetes.
  2. Yes diet can play a part but just because someone eats a lot and doesn’t get much exercise does not guarantee they will get type 2 diabetes. I personally know of a few people who are extremely over weight yet do not have diabetes.
  3. With type 2 generally speaking the body may still be making insulin but the body does not react to it correctly. In effect giving them the same symptoms and the same complications as an untreated type 1 diabetic.
  4. According to research the following can all be linked to different extents to becoming a type 2 diabetic.
    1. Genetics
    2. Diet
    3. Stress
    4. Pollution
    5. Plastics
    6. Chemicals
    7. Certain Medications
    8. The body’s own hormones.
    9. (Only one of the above has to do with eating)
  5. The fact of the matter is we do not know what actually causes type 2 we just know that there are rick factors for getting it, but having all the risk factors does not mean you will definitely become a diabetic.
  6. More research is needed but I’m sure you’ll agree that the government does not want to help with that either.

Besides all the scientific data that Mr. Mulcavey is obviously unaware of, there is this thing called compassion which from his remarks seems to be something he lacks. His remarks are to say the least cold and unkind. His remarks lump anyone who is at home eating less than desirably into a category that in his mind is a category of no good, worthless people who don’t care in any way about themselves and their eating habits. It makes me wonder if he feels that someone who is on SSDI and can’t get out of the house because of a disability and only has so much money to buy food with is in that category. Does being unemployed with no money to go out and eating a less than perfect diet make someone get diabetes? The bottom line is that there are a lot of reasons one might be as he says sitting around and eating poorly. It doesn’t mean they are choosing that and it certainly doesn’t mean they will become a diabetic.

Because of his position at the White House his ignorance and attitude scare me. Not just for diabetics but for humans in general. Through his words it seems like he doesn’t care what happens to people. That we should not try and help others because at the end of the day everyone problems are of their own making. That is not something I don’t believe or subscribe to at all and if others in position of power (and there are) feel the same as he we are in alot of trouble.

A lot of people are ignorant when it comes to diabetes. People with diabetes can tell you that people say the craziest things and believe the weirdest things about diabetes that are not true. That doesn’t make them bad people, they are just misinformed. Educate them and they get it. My fear is that Mr. Mulcavey can’t be educated. My fear is that he honestly believes what he said and it isn’t going to change. What is even scarier about it is that he is in a position of power in our country and what he says could have in impact on real people.

I’ll shut up now, but I’m still angry.

May 122017
 

I guess I’m angry. Not the in your face I’m going to yell at you type of anger but more the simmering, it’s inside me type of anger that at some point will most likely erupt like a volcano. I have a few issues.  I have had these issues for quite some time but really haven’t had the time to address them. You see like most people I have a job that I go to five days a week and when the day is over I just want to relax. The problem is that more and more these issues I have are becoming harder and harder to ignore. I can’t keep just thinking in my brain I’ll deal with this another time. It is literally a matter of life and death for me.

I have some health issues. Amongst a myriad of health issues that I have, diabetes and cardio vascular disease are my two biggest worries. They are expensive diseases to have and have become more and more expensive every year to the point that I can’t afford to do what I need to do in order to keep things in check. Not being able to afford the care and drugs I need is the overbearing issue that I sometimes lose sleep over. I honestly sometimes pray to GOD as I lie in bed at night asking him to not take me yet, to let me live and see another day. So far GOD has said yes to my prayers but I always worry that someday the answer will be no.

Now before anyone asks the question I will tell you that yes, I absolutely have health insurance. But even with what is supposedly a good plan my prescriptions alone add up to over $400.00 per month. It wasn’t always that way but for the last four years, every year the cost I pay per month for health insurance and co-pays go up and I get less coverage than the previous year. Five years ago the same medications cost me about $170.00 per month, still a high number to me but a manageable one.

I could point fingers at politicians, pharmaceutical and insurance companies and yes they are part of the problem but it doesn’t really do me a whole lot of good at the end of the day. At the end of the day, the politicians are still in power not looking after the best interests of their constituents, the pharmaceutical companies are still charging whatever they want for life saving drugs and the insurance companies are always looking for a way to not cover what ails you in order to up their profits.

Above I said I was angry. Well I am and to be honest I am not sure what to do about it. I use to blog a lot years ago and for reasons I don’t even know myself I stopped blogging. Today I decided I am going to try and give it another shot. I will begin blogging again and maybe this time something I write will help end the insanity that is what we call healthcare in this country. Maybe, just maybe I can make a difference ot die trying.

I have always been a big believer that people, no matter what their station in life should never have to worry about paying for healthcare and should never have decide if they pay a bill or pick up a prescription. As human beings we should be looking out for one another and politics, corporations and just plain greed should never factor into the equation.

Right now, down in Washington, politicians from both sides of the spectrum are playing games with the health and wellbeing of millions of Americans. It is time for this to stop. It is time that we the citizens of the United States and not the big corporate lobbyists are listened to by our law makers and if they don’t listen we need to get rid of them. All of them, Democrat and Republican alike. Neither side is looking out for your best interest.

Welcome

 Ramblings  Comments Off on Welcome
Mar 262017
 

Welcome, I am currently redesigning this whole site so please be patient. I promise to be back!

 Posted by at 2:00 am