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DBlog Week 2017: The Blame Game.

 Diabetes, HealthCare, Heart Disease, Type 1, Type 2  Comments Off on DBlog Week 2017: The Blame Game.
May 172017
 

I would like to first apologize for not being able to post the last two days. I signed up for the Diabetes Blog Week #DBlogweek with full intentions of posting every day. Monday morning I was sitting at my lap top about to begin writing Monday’s blog when I heard a crash so I went to investigate. Without getting into details I ended up taking my wife to the hospital. She is ok now but it kind of took precedence over blogging.

Well now it is Wednesday and here I am. I will post what I would have posted on Monday and Tuesday this weekend but today I’m going to stick to the topic of the day, “The Blame Game”.

Over the years I really haven’t experienced very much finger pointing at me as far as my diabetes goes. I have absolutely experienced and still do, a lot of well-meaning people say things out of ignorance about what I need to do at any given moment but blaming me for having diabetes or for having high sugar levels, not so much. I guess I’m lucky that way with one exception. That would be my primary care doctor, sort of.

I am not the type that as a rule allows what other people say to me to bother me on a personal level. It’s not that I don’t care it’s more that I know that everyone has their own thoughts and opinions but that doesn’t mean they are right. So it doesn’t bother me when people are pointing fingers. I take it with a grain of salt. With that said, I have this primary care doctor who I go see basically to get refills for prescriptions other doctors (specialists) have prescribed for me. Now what he says to me in the examination room doesn’t bother me. It’s what happens after.

I recently went to see him less than two weeks ago. Every time I see him about a week later I get in the mail a summary of the visit. And it always says under the reason for visit and assessed problems sub section the following:

  • Coronary Artery Disease
  • Diabetes Mellitus with neurological manifestations, uncontrolled
  • Diabetic Neuropathy
  • Long term insulin use
  • Noncompliance with treatment

 

Well I take issue with this section as I don’t feel it is accurate. Now remember this all falls under the “Reasons For Visit & Assessed Problems” section.

Line One, Coronary Artery Disease: Other than getting my heart med refills I do not go to him for my heart issues. I have two specialists I see for that. So why is this here?

Line Two: I get the neurological manifestations part but the “uncontrolled” part kind of bugs me. Yes, I have been having issues as of late but it is not for my lack of trying but instead an issue of conflicting medications and other factors.

Line Three: Diabetic Neuropathy. Isn’t that what line two says?

Line Four:  Long term Insulin Use.  Is this an assessed problem? That is where this line is on the summary. This being here makes me feel like I am doing something wrong by using insulin. It might as well say Long Term Heroin Use because that about how it makes me feel. Last time I checked, I kind of don’t have a choice. Taking insulin for me is a given and unless they come up with a cure for diabetes it is something I will be doing for the rest of my life …. Also he doesn’t write my script for insulin. I have a diabetes specialist for that. So why is this even here?

Line Five:  Noncompliance with treatment.  Maybe I am being petty but this line bugs me the most of all. It bugs me because I try very hard to take care of my diabetes. The problem is not noncompliance but more that I have other medical issues which interfere with my ability to keep my sugar levels in check at all times. Over the last couple of years I have been prescribed medications for other issues that directly interfere with my glucose levels in both directions. I have had to stop taking meds and get new ones prescribed for this reason. Noncompliance suggests that I am making choices not to take care of myself. So this kind of angers me a bit and it also suggests that he feels I am to blame. For the record.  I and nobody with diabetes is to blame for having diabetes. It is not something that anyone wishes they could suffer from.  Also as far as what a person is responsible for as far as treatment goes, a person only needs to give it their best effort. Nobody can ask for more than that and that is all anyone can do. And that is what I do. I always try to keep things under control. It just doesn’t always work out that way but it is certainly not a noncompliance issue.

There are things that should be on this little list but aren’t. It really does make me wonder about the purpose of this summary. Is it really a summary of what they are billing me for?

So there you have it. The written word bugs far more than someone standing in front of me blaming me for something.  Not sure what that says about me. It’s just the way it is.

As far as the second part of today’s topic. I don’t think I would want to turn him into puppet and make him say want I want to hear. It’s not really what he says that bugs me it is the damn letter I get a week later that bugs me.  With that said it might be nice if he would just acknowledge that I am trying. I’m not noncomplying! That there are other issues going on. Although he is not the one prescribing all my meds for me he definitely knows that I am on them and he knows what they are for. After all he is the one that sends in the refills for them.

The more I write here the more I believe I am going to question him on all this next time I see him. Might be the healthy thing for me to do and maybe the next letter will be different.

May 122017
 

I guess I’m angry. Not the in your face I’m going to yell at you type of anger but more the simmering, it’s inside me type of anger that at some point will most likely erupt like a volcano. I have a few issues.  I have had these issues for quite some time but really haven’t had the time to address them. You see like most people I have a job that I go to five days a week and when the day is over I just want to relax. The problem is that more and more these issues I have are becoming harder and harder to ignore. I can’t keep just thinking in my brain I’ll deal with this another time. It is literally a matter of life and death for me.

I have some health issues. Amongst a myriad of health issues that I have, diabetes and cardio vascular disease are my two biggest worries. They are expensive diseases to have and have become more and more expensive every year to the point that I can’t afford to do what I need to do in order to keep things in check. Not being able to afford the care and drugs I need is the overbearing issue that I sometimes lose sleep over. I honestly sometimes pray to GOD as I lie in bed at night asking him to not take me yet, to let me live and see another day. So far GOD has said yes to my prayers but I always worry that someday the answer will be no.

Now before anyone asks the question I will tell you that yes, I absolutely have health insurance. But even with what is supposedly a good plan my prescriptions alone add up to over $400.00 per month. It wasn’t always that way but for the last four years, every year the cost I pay per month for health insurance and co-pays go up and I get less coverage than the previous year. Five years ago the same medications cost me about $170.00 per month, still a high number to me but a manageable one.

I could point fingers at politicians, pharmaceutical and insurance companies and yes they are part of the problem but it doesn’t really do me a whole lot of good at the end of the day. At the end of the day, the politicians are still in power not looking after the best interests of their constituents, the pharmaceutical companies are still charging whatever they want for life saving drugs and the insurance companies are always looking for a way to not cover what ails you in order to up their profits.

Above I said I was angry. Well I am and to be honest I am not sure what to do about it. I use to blog a lot years ago and for reasons I don’t even know myself I stopped blogging. Today I decided I am going to try and give it another shot. I will begin blogging again and maybe this time something I write will help end the insanity that is what we call healthcare in this country. Maybe, just maybe I can make a difference ot die trying.

I have always been a big believer that people, no matter what their station in life should never have to worry about paying for healthcare and should never have decide if they pay a bill or pick up a prescription. As human beings we should be looking out for one another and politics, corporations and just plain greed should never factor into the equation.

Right now, down in Washington, politicians from both sides of the spectrum are playing games with the health and wellbeing of millions of Americans. It is time for this to stop. It is time that we the citizens of the United States and not the big corporate lobbyists are listened to by our law makers and if they don’t listen we need to get rid of them. All of them, Democrat and Republican alike. Neither side is looking out for your best interest.